Palliative & End-of-Life Care Consumer Survey

Which best describes you? (the respondent)

(Family/Carer can complete survey twice if one response is on behalf of person with life limiting illness)

Do you identify as First Nations? 

Where do you reside?

Which of the following types of palliative and/or end-of-life care support have you received? Select all that apply.

Before receiving care or support, how familiar were you with what palliative care involves?

How well do you feel you understand what palliative care is and what it offers?

To the best of your knowledge, do you feel there is adequate access to and support from palliative care in your region -

a) during business hours

b) after hours

(Business hours are categorised as 9am until 5pm. After hours are hours outside of business hours.)

Are/were palliative care referrals and interventions made in a timely manner?

Palliative care information is accessible in an easy-to-understand language.

How involved have you been in planning your care and making decisions about your treatment and support?

How involved have you been in planning care and making decisions for the person you are caring for?

How confident are/were you in providing care when the person with life limiting illness becomes/became more unwell?

The medical information provided to you assisted to recognise and manage the progression of symptoms?

The independence of the person with life limiting illness has/had been enabled for as long as possible from receiving diagnosis to illness progression or end of life?

In your experience, have cultural needs/rituals been acknowledged and included during the palliative care journey?

Are/were services offered to both the both the person with life limiting illness and family/carers to support mental health and wellbeing? E.g. Bereavement and counselling services.